Imagine if you were about to have a baby. Now imagine you’d
heard that there was a test that could be carried out on all newborn babies – a quick, easy and painless test that could help detect potentially life-threatening heart disease. You’d want your baby to have that test, wouldn’t you?
that’s why they have created their latest campaign, Test for Tommy. The campaign is named in memory of baby Tommy, who died from undiagnosed heart defect at eleven days old. And by ‘test’, they are referring to pulse oximetry testing.
newborn checks (NIPE), meaning not every baby leaving hospital has the test. One in 125 babies are born every year with a serious heart condition and, at present, 1000 leave hospital with no-one knowing they have a potentially
life-threatening illness. Tiny Tickers wants to change that, by creating a safety net for those 1000 babies. They are doing this by placing pulse oximetry machines in maternity wards across the UK.
and see the difference a pulse oximetry test can make…
failure that his mum, Natasha, now knows about – his skin was a blue colour, he didn’t want to feed, he was always asleep and cold to touch. Natasha knew something was wrong and voiced her concerns to numerous medical professionals,
but it was too late. Tragically, at 11 days old, Tommy passed away. Tommy’s post-mortem showed he had Transposition of the Great Arteries, a heart condition that can be treated with surgery. Natasha is now passionate about ensuring all babies receive a pulse oximetry test because, if Tommy had been
tested, he may still be here today.
Unlike Tommy, he received a pulse oximetry test after birth. His oxygen saturation levels were dangerously low and his heart condition was diagnosed soon after the test. Tom had open heart surgery at eight days old and is now approaching his third birthday. His mum Nicola, forever grateful for the pulse oximetry test that helped to save his life, says, ‘Without the pulse oximetry test, which is currently not a compulsory part of newborn testing, we would have been sent home. It terrifies me how differently our story may have turned out.’
reality for Natasha. The stories of two babies with similar names and the same heart condition end so differently because one was offered a pulse oximetry test and the other wasn’t. It’s that simple.
Can you help?
at hospitals throughout the UK and, through the Tommy’s Test campaign, they seek to fund 330 by 2021. But they need our help. With congenital heart disease being one of the biggest killers of infants in the UK, there’s no time to waste.
sure every baby receives a pulse oximetry test by donating today. For more information, and to donate to the Test for Tommy campaign, visit Tiny Tickers or text BABY46 £5 to 70070 and help support more tiny hearts.
losing your baby. It’s a pain nobody wants to imagine or ever feel’. Let’s help Tiny Tickers ensure no more babies die from an undiagnosed heart condition.